Good news or bad news

Like every parent of a child with autism, I am searching for answers. What causes autism and why? Why was my daughter progressing well and learning how to talk one day to silent the next? Why does she cover her ears now all of a sudden with no real reason? It doesn’t look like we will be getting answers anytime soon.

We had genetic testing done on Sissy a few months ago and have been anxiously awaiting the results. Today was the day! When I picked up the phone and recognized the number calling, my heart dropped to my stomach. I hesitated at first because I didn’t know if at that moment I wanted to know the results. Good news or bad news?

Thankfully, there are no chromosomal abnormalities. But is that good news or is it bad news? Good news because my daughter doesn’t have Fragile X Syndrome or any of the most common genetic contributors to ASD. However, I’m torn because I wanted an answer. I wanted someone to tell me this is why your daughter has autism or your daughter has this disorder and this is what we can do to help. No such answers. Because autism is such a complex disorder we may never have answers. 

I’m not going to lie, I’m devastated. However, I will not stop searching for answers to my questions. 

XO,

Stacey

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